At 21 weeks’gestation, we were informed that our daughter, Annie, had a genetic condition associated with profound disabilities. Thus began the most difficult but, ultimately, most enriching journey of our lives.
This article is not about a child with anencephaly, but the family's perspective after a poor prenatal diagnosis is very well expressed.
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Barbara Farlow, The decision to accept disability: One family’s perspective, Paediatr Child Health. 2008 May; 13(5): 367.